Marfan Syndrome Public Awareness in St. Louis

The St. Louis media has always been very interested in Marfan syndrome. When the NMF held its Heartworks Gala there on March 7, it gave us the opportunity to capture the interest of the local media again. This was an excellent public awareness piece, featuring Dr. Angela Sharkey, the pediatric cardiologist who heads the clinical trial (losartan vs. atenolol) at St. Louis Children's Hospital, and NMF member Amber, a seven-year-old who is in the study. It aired on Monday, March 16.