In My Hands, a new documentary about Marfan syndrome that was produced by Sister Productions, was screened for the first time at the NBC Universal Screening Room in New York City on May 27. The film -- created by Tony Award winner Ann Reinking, Brenda Siemer Scheider, who is Roy Scheider’s award-winning wife, and Emma Joan Morris -- is a moving, heartwarming account of learning to live with Marfan syndrome. Mayor Michael Bloomberg was on hand to introduce the film to a packed room of VIPs and friends.(The photo features, l-r, Hal Dietz, MD, Emma Joan Morris, Mayor Michael Bloomberg, Ann Reinking, Brenda Siemer Scheider, NMF President and CEO Carolyn Levering and NMF Board member Karen Murray.)
The documentary features several individuals and families who have faced medical and psychosocial challenges with Marfan syndrome. It was filmed partly at the NMF's Annual Conference at Stanford University in 2007.
The screening was featured on Hamptons.com this week, thanks to Ann Watt, the long-time friend of the NMF who started the Tall Club of New York City and is now a professional photographer. She was our volunteer photographer at the screening and brought a colleague, John Wegorzewski, who lost a sister to Marfan syndrome. John writes for Hamptons.com and Ann often provides the site with photos.
The NMF is thrilled with the coverage, which gives us exposure among the film community that is on the East End of Long Island after Memorial Day (as well as the Internet coverage which is, of course, worldwide).
The film makers -- and the NMF -- are looking for further distribution and broadcast opportunities. Leads can be directed to Jonathan Martin, NMF Director of Education and Awareness, jmartin@marfan.org.
The documentary features several individuals and families who have faced medical and psychosocial challenges with Marfan syndrome. It was filmed partly at the NMF's Annual Conference at Stanford University in 2007.
The screening was featured on Hamptons.com this week, thanks to Ann Watt, the long-time friend of the NMF who started the Tall Club of New York City and is now a professional photographer. She was our volunteer photographer at the screening and brought a colleague, John Wegorzewski, who lost a sister to Marfan syndrome. John writes for Hamptons.com and Ann often provides the site with photos.
The NMF is thrilled with the coverage, which gives us exposure among the film community that is on the East End of Long Island after Memorial Day (as well as the Internet coverage which is, of course, worldwide).
The film makers -- and the NMF -- are looking for further distribution and broadcast opportunities. Leads can be directed to Jonathan Martin, NMF Director of Education and Awareness, jmartin@marfan.org.
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